For Beydn. Never Enough.
Thursday, December 7, 2017
For Beydn Facebook Donation Button
For Beydn accepts donations via paypal @ forbeydn@gmail.com
All donations are tax deductible under Tax ID #: 47-1091680
All donations are tax deductible under Tax ID #: 47-1091680
Tuesday, September 1, 2015
Wednesday, July 29, 2015
The Last Annual Vol State 500KM road race
So close to Mack's |
Downtown Hampshire |
Sunday, November 9, 2014
52
Everyone has Timehop for their Facebook
these days, and it’s great because you can glance backwards in time to that
exact day and see what you were doing- one, two, three, even seven years ago,
as far as your social media capsule will reach.
An amazing, fun use of technology.
I, however, am afraid to glance onto the app these days, because I most
certainly know what was going on last year.
I was watching Beydn struggle to live; he fought so hard. He displayed
more courage than I will have in ten lifetimes, and he lost his battle. November was the start of it, the month he
was diagnosed. Optimism was high and worry was rampant but we all knew he was
going to beat T Cell ALL. Looking back,
I was a fool and didn’t have an understanding of what he faced. I simply read the statistics and had
unwavering confidence that every bump in the road was a step toward remission, being
cured and living a normal life. Had I
known then what I know now I would’ve crawled into bed with him every second. I
would have cried on his shoulder and would’ve hugged him enough to make up for
the 71 years of life he would lose.
The problem is as a cancer parent
you learn these things- you can never hug your kids enough and crying will
always be there. He didn’t want me to
crawl into his bed with him. He was, after
all, almost 11, and at that age where he was too cool, but dammit I would’ve
stayed awake 24/7 just to stare at him while he slept. All of these could haves, should haves and
would haves will never go away, but what can go away is the disease that killed
him, the disease that will kill many more.
See, the most horrible thing was Beydn beat Leukemia. On December 7th his tests came
back clear and in remission. The problem
was his lack of immunity made him susceptible to anything and everything. He died from a non-treatable mold fungus
named SCEDOSPORIUM. We tried for three
weeks with every anti-fungal drug available and nothing happened. In the end these fungal infections will kill
many more kids, unless we make sure that they are eradicated. This enemy and killer of kids needs to be
wiped clean from the planet, and we can do this but it will take everyone’s
help. I promised Beydn in his hospital
room on February 22nd, between tears, that I would fix this the way he
fixed me, the way he saved me. I will
spend the rest of my life finding a way to save as many kids as possible
because in the end that’s what Beydn would be doing.
Starting last weekend, November 2,
2014, with the NYC Marathon I am attempting to complete 52 marathons in 52
calendar weeks. This blog and our
website will have a tentative list of events, and if you would like to meet me
at them and talk please do. Throughout
these marathons For Beydn will be fundraising so please continue to check back with
us for updates on events and how to support, donate, and spread the word. This sounds somewhat crazy or impossible, but
I will run hard and complete all these races for Beydn who will be with me
every step. Please spread the story of
the crazy active duty Soldier who is running and running... and running. And help us spread the word for Beydn on
December 1, 2014 by signing up for Thunderclap to post on your Facebook or
Twitter. If it goes well this will be a tool
we’ll use to #forbeydn on his birthday as well.
https://www.thunderclap.it/projects/18650-never-forget
Wednesday, November 5, 2014
Monday, May 26, 2014
Beydn Swink Virtual 5k
The first ever FOR BEYDN VIRTUAL 5K will begin June 1 and going until July 1, 2014. Runners have the entire month to complete a 5k and submit their times to forbeydn@gmail.com. On July 1 all times will be uploaded to this blog and the overall male and overall female will receive a pre-paid gift card with their medals, additional three bib numbers will be drawn randomly and those runners will receive iTunes gift cards as well. The medals are 2' bronze insert medals with The For Beydn Logo inserted. Each medal spins, comes with a blue velvet gift pouch to hold the medal, a thank you letter for the foundation, a tax deductible receipt, and a card for 20% off our next race. The racers can run the race via treadmill, trail or road, track etc, Simply lace up your shoes and get some miles in for a good cause. Shipping is built into the $20 cost of the race as well. Medals will be mailed following the July 1 deadline. Each racer is encouraged to email us a story of how cancer has affected them. Sign up for the race via emai/paypal at forbeydn@gmail.com.
Thank you in advance
Thank you in advance
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